God, we need you..

Preliminary MRI results show that hailyn does in fact NOT have disorders if creatine. the genticist (as us likewise) are pretty dismayed by this.. creatine just fit so freaking perfectly.. she said maybe they'll find it by the time the final report is printed. she said shes going to send it to a doc in (was it mexico? england? i forget.) and see if it looks like the other 5 peoples with this disease. she wants us to try a one week trial of distributing creatine to hailyn anyway to see if it at least improves her balance. anything to try and help her, right? i'm going to document everything on video, in case she does improve it'll be monumental for reasearch of the disease...
we're not giving up yet but honestly i've never been so disappointed in my life. if she doesnt have this that means were back at square one. (fuck that square.) and we only have full coverage insurance for 3 more months.. i dont think we'll ever be able to afford even the copays on a genetic test. which means we never find out, which means we can never improve her quality of life. which means if her children have it we cant help them either. they'll have to suffer from a million tests too. the future is a scary and intimidating place, God, we need you now. we need a miracle for hailyn, a real one..
ladies, i beg of you, pray for my lil dolly. she has the purest, sweetest spirit & soul i've ever seen in my life and i cant stand watching her suffer or struggle anymore. i want her to live regularly. we need big time help from God right now.. and big time support from our friends and family here..
for now.. we keep going. we dont assume anything. we try the creatine.. and we keep her smiling..
((try & pretend you dont see me in my underwear behind her, im just lucky i got the shot..lol))